Charlie Gards parents endure worst day of our lives as doctors to

first_imgGOSH responded to claims by Charlie’s parents that the hospital said no to the baby dying in a hospice and refused their offer to arrange private transport to their home.A spokeswoman said: “As with all of our patients, we are not able to and nor will we discuss these specific details of care.”This is a very distressing situation for Charlie’s parents and all the staff involved and our focus remains with them.”Charlie’s parents wanted their son to undergo a therapy trial in the US, but specialists at GOSH said it was experimental and would not help. Charlie Gard was born with a rare genetic condition Charlie’s plight has touched many people and the family received donations totalling more than £1.3 million to take him to the US for therapy.Campaigners also pledged their support to the family on social media with hashtags including #charliesfight #Fight4Charlie and #LetCharlieGoHome. Chris: “We want to give him a bath at home, we want to sit on the sofa with him, sleep in the bed with him, we want to put him in a cot he’s never slept in. But we’re now being denied that.”We had a meeting yesterday in which we were told we were going to discuss our options, and we’ve said we would like to take him home, and if that’s not possible a hospice. They said no to both, he has to die in that hospital.” Chris: “You can see on our T-shirts, it says, ‘If he’s still fighting, we’re still fighting.’ And he’s still fighting over there, believe me, he’s still fighting. He’s a little fighter, he’s a little trooper and he’s a soldier.”He will fight to the very end, but we’re not allowed to fight for him any more.’ Charlie Gard Charlie Gard’s parents wanted their son to undergo a therapy trial, but specialists said it would not helpCredit:PA Supporters of Chris Gard and Connie Yates, who endured a long legal battleCredit:Nick Edwards for The Telegraph Charlie Gard’s parents are facing the “worst day of our lives” as their baby son’s life support machine is set to be switched off on Friday after a long-running legal battle.Chris Gard and Connie Yates wanted the 10-month-old, who suffers from a rare genetic condition and has brain damage, to be allowed to die at home.But they claimed that Great Ormond Street Hospital (GOSH) – whose medics had argued that a therapy trial in the US was experimental and would not help – denied them this request.  The couple, both in their 30s and from Bedfont, west London, also said they were being rushed – despite having been promised they would have all the time they needed to say goodbye to their son. Chris Gard and Connie Yates with their son Charlie Gard in hospitalCredit:PA The couple struggle to control their emotions as they tell of their agonyCredit:YouTube/Charlie’s Fight Connie: “And he is still so stable, that’s what’s so hard. He’s so stable.” Charlie Gard parents Charlie Gard parents The couple thanked supporters for their help in their legal fightCredit:YouTube/Charlie’s Fight They had asked European court judges in Strasbourg, France, to consider their claim after judges in the High Court, Court of Appeal and Supreme Court in London ruled in favour of Great Ormond Street doctors.But on Tuesday the European Court of Human Rights refused to intervene. Charlie Gard Connie: “The 4th of August, 2016, was the best day of our lives, the day that Charlie was born. The 30th of the sixth, 2017, is going to be the worst day of our lives.”Charlie will die in Great Ormond Street Hospital. Thank you everyone for all your support.” Parents’ heartbreaking video messageChris Gard and Connie Yates, the parents of Charlie, posted a video message on YouTube on Thursday night, telling of their agony and thanking supporters for their help: In an emotional video posted on YouTube on Thursday night, Ms Yates described the day Charlie was born, August 4 last year, as the best day of their lives but said June 30 2017, would be the worst.Alongside the video, Charlie’s parents wrote: “We are utterly heartbroken spending our last precious hours with our baby boy.”We’re not allowed to choose if our son lives and we’re not allowed to choose when or where Charlie dies. We, and most importantly Charlie, have been massively let down throughout this whole process.” Connie: “They said they couldn’t get transport to take us home, so we’ve offered to pay for that privately and they said that’s not an option.”Chris: “I’m sure you’ve read in the media that they’ve come out and said, there is no rush to do all this, we’re working closely with the family to arrange his end-of-life care.”Connie: “We have literally begged them today to give us this weekend.”Chris: “Some of our family and friends can’t come. They can’t come before tomorrow. So the last time they saw Charlie will be the last time they see him.” Supporters of Chris Gard and Connie Yates  Chris Gard and Connie Yates with their son Charlie Gard His parents said Charlie would die “knowing that he was loved by thousands”, adding “thank you to everyone for all your support!” Want the best of The Telegraph direct to your email and WhatsApp? 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